Blog of Random Thoughts
I am gaining weight, and it is not a good thing because the increase in weight is a bit too fast. I have gained I think 3 lbs since my last weigh in and I am concerned about that because rapid weight increase may be due to increased ascites fluid. Mel wanted me to contact…
Family is revealed most clearly by who arrives when nothing is required of them. When people show up with care in their hands, food, help, time, presence, they are not defining family with words. They are defining it with action. Over the past couple of months we have had a lot of people do this….
We talked with the social worker yesterday and we are going to have individual sessions for everyone. The social worker wants me to unpack my feelings. We told her that I write about everything daily but I think that they are concerned that I am not feeling any sorrow or sadness. The concern is that…
I am not sure if the ascites build up is increasing or not, but there is a bit more discomfort within my abdomen. Mel thinks that it may be due to my muscles just getting use to things. It does feel that it does feel like muscle over anything else. It feels like tightness in…
My sleep has not been great lately as I get up in the middle of the night. It seems that my body decides at that time that a bowel movement is urgent and it wakes me up. I could go back to sleep but I take it as an opportunity to eat. This may also…
Things were starting to get planned and then all of a sudden everything changes. As they were scheduling more and more appointments for me I contacted the research coordinator and asked if I should book the hotel for next week. He told me not to book anything until one of the doctors called me. A…
When Xavier first started his goalie training we had some group sessions that he would attend. Normally my preference is to 1:1 training as it caters to him and not to the lowest common denominator. These sessions were free as the association had paid for them and he would go and socialize with other kids…
Today is family day and we have been pretty lazy today. Mel slept in until close to 10:45am, where she just lounged in bed. We have not had a weekend like this in a while where she can sleep in. I did not sleep in and was up at 3am. It is awesome with the…
I am going to start this post about my sister in law because that was requested. Whenever my mother in law asks me if she can make me anything I always request the same thing. Flan. For over 15 years I have requested that, maybe even closer to 20 years. She made it once and…
Today we decided to go to Mt. Dufour for a family ski trip, except that I can not ski right now. On the drive here we had a discussion about grades and we had to explain to Olivier that sometimes you need to play the game and answer things accordingly and not necessarily answer “truthfully”….