Blog of Random Thoughts
This morning I went in and had my port inserted. They asked me if I wanted sedation or not. I was told 50% of the patients do and the only reason they do is to calm their nerves. I was informed that it is painless and an easy procedure. What I told the nurses and…
I am not sure exactly why, but it seems that today I have received quite a few messages from family, friends and colleagues telling me that they have been praying for me or attending church. Everyone believes in the power or prayer and positive thinking. What this shows is that people value me and are…
Monday night is when we shop at Costco and we saw a couple of parents from our hockey team there last night. It is one of the only nights during the week that we do not have any hockey so it works out well. After walking throughout Costco, it makes me a bit tired, so…
I am gaining weight, and it is not a good thing because the increase in weight is a bit too fast. I have gained I think 3 lbs since my last weigh in and I am concerned about that because rapid weight increase may be due to increased ascites fluid. Mel wanted me to contact…
Family is revealed most clearly by who arrives when nothing is required of them. When people show up with care in their hands, food, help, time, presence, they are not defining family with words. They are defining it with action. Over the past couple of months we have had a lot of people do this….
We talked with the social worker yesterday and we are going to have individual sessions for everyone. The social worker wants me to unpack my feelings. We told her that I write about everything daily but I think that they are concerned that I am not feeling any sorrow or sadness. The concern is that…
I am not sure if the ascites build up is increasing or not, but there is a bit more discomfort within my abdomen. Mel thinks that it may be due to my muscles just getting use to things. It does feel that it does feel like muscle over anything else. It feels like tightness in…
My sleep has not been great lately as I get up in the middle of the night. It seems that my body decides at that time that a bowel movement is urgent and it wakes me up. I could go back to sleep but I take it as an opportunity to eat. This may also…
Things were starting to get planned and then all of a sudden everything changes. As they were scheduling more and more appointments for me I contacted the research coordinator and asked if I should book the hotel for next week. He told me not to book anything until one of the doctors called me. A…
When Xavier first started his goalie training we had some group sessions that he would attend. Normally my preference is to 1:1 training as it caters to him and not to the lowest common denominator. These sessions were free as the association had paid for them and he would go and socialize with other kids…