Blog of Random Thoughts
This morning I woke up to quite the surprise on how quickly the GoFundMe had spread. Mel wants to write a joint post outlining our appreciation for people. I have told her that I have written about things like that repeatedly, but tomorrow morning we will write a joint post thanking people for it. What…
In the last week I have been documenting a lot of what has been happening, mostly so I have a record and so I can come back and remember what occurred each day. I have missed writing about positive aspects with my writing being more clinical outlining everything. This is mostly due to the fact…
Each passing day it seems that my progression is getting better in some things and worse in others. I think it is expected as the impact of the treatment is cumulative and I keep on trying to push things more and more. Last night I ate twice, at midnight and then again at my usual…
Last night I had a bit of incontinence so I can 100% now say that it is triggered by fatigue. When I went to bed last night I was completely exhausted and fell asleep immediately. It felt like I had just finished a really heavy day if physical activity, so I was a bit concerned…
I am still recovering from the weekend but things are getting better. Physical tiredness is much easier to deal with then mental. When I have mental acuity I can deal when my body says it can not. I had a lot to do this morning with work and I was in calls for most of…
We drove home this morning from Timmins and the weather was not great for most of the ride. Today was a bit weird as I did not feel great for most of the day. My taste buds seem a bit odd as things do not taste right. All tastes seemed muted and bland. I have…
Yesterday was a bit of a rough night. Our floor was quite loud with parents spending time congregating in the hallways instead of within the tiny rooms. It was a bit annoying and we eventually called down and someone came up to tell them to stop. The noise stopped for a bit and then came…
I started off this morning taking 4mg of my steroid to help things out with fatigue today and I am not sure if it helped or not, but I was able to eat more food today when I do eat. I am careful about the amount that I eat especially when we are out and…
I had the bottle disconnected today and it feels so much better after it happens. Motion in the right arm is a bit limited as I can feel things a lot when I move around. Every one tells me that it is supposed to be so easy and painless but it is still a bit…
I have such a short memory and after 2 weeks I tend to forget what it was like. I thought that a couple of weeks ago I thought that it was due to the port being recently implanted. It is quite uncomfortable as I can feel the liquid going into me and I need to…