Blog of Random Thoughts
We finally met with the doctors from Spain today and it was quite the conversation with that team. The conversation started off that they were worried about me and that they were concerned about how much I decreased after I left the hospital. We had a discussion on why it might have occured and Mel…
I am tired. Mel mentioned that yesterday was my first day off steroids that I have been on for 3 weeks. The impact of getting off the steroids is to be expected I think, and now that I know what the trigger is for all of the fatigue it is not too bad. Mel also…
There are so many small things that you take for granted as easy to do until it is difficult. Right now with my blood pressure low, I need to slowly get up and make sure that I can physically stand up without feeling too weak. My bladder is a bit messed up right now where…
This morning we had a meeting with the oncologist and some other appointments. The traffic in the morning when school buses is running is crazy, a trip that can normally take 5 minutes can get extended an extra 10 or 15 minutes because kids are picked up two driveways apart. We arrived at the cancer…
Everyone wants the best for their kids and most parents that I know try and give their child what they did not have and give them a better life. I know that is why my dad chose to leave Vietnam for here with all of the risks. Right now we are in the middle of…
Yesterday morning a friend of mine sent me a photo and I made the front page of the printed Sudbury Star which I think is hilarious that they put it there. I guess that it is a feel good story and it is for a good cause. I did not really see a huge spike…
This morning when I woke up I has thinking about everything that has happened this week and things that I wanted to write about. I wanted to write an update for the GoFundMe but I was not in a great place mentally. What really hit me this morning was I get why people give up…
Read More “April 18th – Week Reflection : I understand now” »
My vision on my laptop was improved significantly but there is a till a bit of fatigue when I am on it but it seems to be getting better the more that I use it. This morning with the nurses I have had interesting interactions. She orginally was going to enter my room but then…
When you do not wear your glasses for days it has quite the impact on your vision. I have not had my glasses since Monday and Mel brought them to me today, I put them on and I have had trouble actually focusing on my laptop. It does not matter if I increase the size…
Mel insisted that I go in on Monday and mentioned that I would agree to listen to her. She still thinks I am too stubborn. Realistically I only had dangerous dehydration and no immune system and low levels across the board. My score for white blood count was 0.2 yesterday and today it is 0.4…