I should have remembered that treatment day when I have taken a lot of steroids that I am up all night long. I managed to sleep I think 2 hours and 34 minutes last night, but I am not super tired today. I also took some more steroids today and will slowly hopefully decrease my dosage and wean myself off. I also have my injection on Saturday. Neuropathy is still atrocious but it is getting better slowly. My lock jaw also only happens with hotter food and the hotter the food the more it tightens up. If the food is room temperature it is fine. If it is cereal it is also fine. My taste buds right now are actually fine a well and have not faded, which is nice.
This entry is a bit late tonight as I just finished working. I had a lot of ideas in my head and did a lot of work and today was fend for yourself meals. Which would suggest that I had more time to work as opposed to less which is the issue as then I get ideas in my head and just keep on working. I am getting tired though. Today does not feel like a Thursday at all and it seems that it is a Friday. I am getting the bottle disconnected tomorrow and I will probably end up having a friend of mine go with me and drive me and we will have a coffee afterwards. Considering that generally the effects of the chemo get worse over the course of time and the week I am a bit concerned at how well I feel today and wonder if it is going to really hit me hard on Sunday and Monday. It might be why I am overcompensating and tryig to hammer through as much things as I can today when I am feeling well as I know that this is going to go down over time. Maybe I can overcome it this time. I just need to believe. Xavier is going to Quebec tomorrow and we will ship off Olivier so that Mel and I can have a relaxing time. That means that she is going to do some sort of housework and I know that on the Saturday she wants to work on the yard. I setup the water leak sensors and set one up in the laundry room and another by the sump pump. I will set one up in the server room and another one by the food in the cold storage. Mel wants them hidden and out of sight. They are linked to an app on my phone and they can be quite loud. I am getting tired so the entry tonight will be short with my philosphical writing. Today has been a good day and I took a quick 30 minute nap at 3:15 and then got up to work again. This lack of sleep is unsustainable and I am going to bed and the goal is 4 hours of sleep tonight. Wish me luck. Hopefully Mel does not keep my up by elbowing me in the head.
Q