Blog of Random Thoughts
Yesterday was a bit of a rough night. Our floor was quite loud with parents spending time congregating in the hallways instead of within the tiny rooms. It was a bit annoying and we eventually called down and someone came up to tell them to stop. The noise stopped for a bit and then came…
I started off this morning taking 4mg of my steroid to help things out with fatigue today and I am not sure if it helped or not, but I was able to eat more food today when I do eat. I am careful about the amount that I eat especially when we are out and…
I had the bottle disconnected today and it feels so much better after it happens. Motion in the right arm is a bit limited as I can feel things a lot when I move around. Every one tells me that it is supposed to be so easy and painless but it is still a bit…
I have such a short memory and after 2 weeks I tend to forget what it was like. I thought that a couple of weeks ago I thought that it was due to the port being recently implanted. It is quite uncomfortable as I can feel the liquid going into me and I need to…
I went out this morning to get my blood work done and the roads are still quite atrocious. I arrived at the hospital and there were quite a lot of people there registering for various things. People who were scheduled for yesterday to come in arrived this morning hoping to have their appointment. Or people…
Last night I almost forgot to post and remembered when I was about to go to bed. I had written the entry earlier in the day and it then slipped my mind to go back and post something. I got distracted with things yesterday and got caught up in things. We had people stop over…
This has been a rough week. I have been in the hospital for 3 to 5 hours every day of this week and I have had quite a bit of discomfort. Mel informs me that what I describe as discomfort most people would label as pain. She is clearly not Asian and has not been…
Sometimes the healthcare system can move incredibly fast. This morning I received a phone call at 7:30am asking if I could come in to get my ascites drained. They asked how quickly I could come in and I replied 13 minutes. It did not take me 13 minutes as I did not remember to factor…
I had quite a few appointments today and they went much longer than I had anticipated. The coordinator dropped by this morning and we established what I needed for home care. I asked for a wheelchair and we will be getting one this week for a 30 day trial to see how much I like…
My abdomen feels really tight and it has not been super comfortable right now. Yesterday Mel and myself went to Costco in the afternoon and we went through the store fairly quickly and that is about the limits of what I can manage. We went through and got all of the groceries required and managed…