I did not sleep well last night and I am still a bit fatigued today. Whenever I tried to take a nap today though I would get a phone call after about 30 minutes. Normally I fall asleep within 3 minutes, but today it was taking me closer to 15 to 20 minutes to fall asleep. There is a lot going on around the house so it is a bit noisy. With my noise cancelling earbuds i can not hear any of the noise nor my fan. Last night at one point I was sweating because I had felt hot but then I managed to go back to sleep. Tomorrow night I will make sure that I take a sleeping pill as I want to make sure that I get a good night’s sleep prior to traveling. My eating today has sucked compared to other days and I need to do a better job. I changed up the texture of food that I ate. I had an untoasted bagel and then crisped up my sticky rice in a pan so it had a different texture. All of that worked for the texture but the taste was non-existent which I prefer to adversive. I had a BK chicken sandwich for dinner and that is generally pretty save for me. This evening I was looking for a left Twix but I could not find them. I had a Wunderbar instead and it tasted so bad I just ate it as quickly as I could. Fluids seem to be safer and more consistent for me right now. I have a nurse coming tomorrow afternoon to drain me but I am not sure how much liquid there will be as right now my weight has not increased that much so there might be 2l of fluid at most I think, which is not too bad to drain weekly. When I was talking with one of my nurses today she said that beside my ANC being low things seemed to be ok, I will also have my Chemotherapy next Thursday instead of Wednesday which is fine. I have had a runny nose all week, and I think that it coupled with my body aches could be similar to cold like symptoms.
Mel went to dinner at her mother’s with her sister and all of the kids. My mother-in-law explicitly told my sister-in-law and Mel that since we did not provide her with any granddaughters that we were not welcome for dinner tonight. Mel told her mother that I did not want to go because I was tired And avoiding people and my brother-in-law is apparently fixing our vehicle at his place. She could have driven food over and also gone over to my brother-in-law and feed him while he worked. I got a phone call from Mel while she was there and I was a bit surprised. She told me that our son had ticket tape synaesthesia. I asked her which one and she said Xavier. I am going to confess that when I looked it up I always assumed everyone had that. What it is, are automatic subtitles that appears in your head when people chat. She found out because they were in the car and Xavier told her to be quiet because he could not see the words. And then she asked him about it. When we are at the arenas I always liked to sit by myself and away from Mel and her family who like to chat. It was too distracting and mentally fatiguing as the words and pages in my head would be filling up fast. Ever since I have had cancer though the words are blurrier and harder for me to recall. Whenever I paid attention in school I would do well because I could recall the information. The issue is that I did not always pay attention and was doing other things. When I am tired now it wording is very faint. Less than 3% of people experience this and it has a 35% hereditary component. I will need to follow up with my siblings to see if they have it or not.
Mach