Blog of Random Thoughts
Yesterday I said that I think that things were going fine. At the end of the treatment I had to go pee and realized that my bladder control was starting to slip a bit as I dribbled some pee down my leg as I was getting up. This was a sign of things to come…
I got off to a bit of a rough start today. We started the day with me forgetting my phone at home and Mel having to go back home to go get it. Luckily we live close by and she was able to go get it for me. Unfortunately Mel did not know where to…
We met with the oncologist today to set things up for treatment starting tomorrow. During our brief visit I received several phone calls. One from my son asking me if I was going to pick him up for his athletic therapy session and several from healthcare people. Xavier normally has his sessions on Monday but…
This morning I went in and had my port inserted. They asked me if I wanted sedation or not. I was told 50% of the patients do and the only reason they do is to calm their nerves. I was informed that it is painless and an easy procedure. What I told the nurses and…
Monday night is when we shop at Costco and we saw a couple of parents from our hockey team there last night. It is one of the only nights during the week that we do not have any hockey so it works out well. After walking throughout Costco, it makes me a bit tired, so…
I am gaining weight, and it is not a good thing because the increase in weight is a bit too fast. I have gained I think 3 lbs since my last weigh in and I am concerned about that because rapid weight increase may be due to increased ascites fluid. Mel wanted me to contact…
We talked with the social worker yesterday and we are going to have individual sessions for everyone. The social worker wants me to unpack my feelings. We told her that I write about everything daily but I think that they are concerned that I am not feeling any sorrow or sadness. The concern is that…
I am not sure if the ascites build up is increasing or not, but there is a bit more discomfort within my abdomen. Mel thinks that it may be due to my muscles just getting use to things. It does feel that it does feel like muscle over anything else. It feels like tightness in…
Things were starting to get planned and then all of a sudden everything changes. As they were scheduling more and more appointments for me I contacted the research coordinator and asked if I should book the hotel for next week. He told me not to book anything until one of the doctors called me. A…
When Xavier first started his goalie training we had some group sessions that he would attend. Normally my preference is to 1:1 training as it caters to him and not to the lowest common denominator. These sessions were free as the association had paid for them and he would go and socialize with other kids…