We drove home this morning from Timmins and the weather was not great for most of the ride. Today was a bit weird as I did not feel great for most of the day. My taste buds seem a bit odd as things do not taste right. All tastes seemed muted and bland. I have been tired all day and woke up tired even though I think that I had slept fine. I had my regular 3am meal but last night I seemed to have more bowel movements than usual and had to get up several times to go to the washroom. Cold drinks are still prickly while it goes down so I try and have my drinks at room temperature. Prior to us coming home we stopped at Pick of the Crop to pick up some food on the ride home. We got a mix of fruits and some meals for the kids on Monday when they go to school. I only took 2mg of my steroid and that may have resulted in me not having as much energy coupled with the long weekend. I think that this is a good lesson for when we go to Spain and how I will need to manage my energy. Food intake is not bad as I know that I need to eat and continuously eat throughout the day. It is not as difficult when we go to a store on the way home and we can load up on prepared foods. I will also need to figure out how to nap when we are getting ready to go down. When we got home I took a nap and I still feel a bit fatigued still. When we are in Spain we will be in nicer hotels and the hospital seems to be quite nice as well so I can hopefully rest.
The two teams from our division won their semifinals and met up in the finals. We did quite well this weekend and showed that we could compete against those teams throughout. It is a bit sad that the season is basically over now and now we will start planning for Spain. We measured all of our suitcases to determine what will be carry on and what we will bring with us. There will alsombe bags when we go out and about. I am still not sure how I feel about this whole wheel chair thing but think it is far wiser to have it. In my head I am still capable, but reality and what my perception of what I can do is vastly not even close to being aligned right now. So it is best to err on the side of caution. The thing that sucks is we will be first onto the plane and one of the later ones to get off. We will need to make sure that the wheelchair is with us.
Mentally and physically I am drained. Hopefully I will recover quickly tomorrow. The buses are not running so the kids will get to stay home tomorrow. I have a bunch of doctors appointments in the afternoon so we will see how long those appointments will take. The person who was supposed to help our doctor fill out the accessibility forms did not do it so we will try and get that done with a different doctor tomorrow. The other person did not even respond to the email for close to a month. With the palliative team they will be on the ball.
Q