My abdomen feels really tight and it has not been super comfortable right now. Yesterday Mel and myself went to Costco in the afternoon and we went through the store fairly quickly and that is about the limits of what I can manage. We went through and got all of the groceries required and managed to get out and get home. Last night we cheated for dinner and got a rotisserie chicken so we would have some leftovers for the kids lunch today. When we got home I tried to make a gravy and cut the chicken and i must say that I struggled a lot with it. I was so fatigued that Xavier took over for making the gravy and he did a great job while I cut up the chicken for dinner. It seems that things are getting a bit worse as opposed to better, but I think it may also be due to my lack of bowel movements right now. We will see if there is relief in the next couple of days for this.
I still have a bit of a rash around the port from where I had my bandages and I am hoping that they go away in time for next week when they will be taped up again. I have been applying cream to it 2 or 3 times a day, but it does not seem to be healing as fast as I had hoped for. For my mouth rinse I have my alarms now set so I can do it 4 times day and I think it is something that I should do to prevent mouth sores as the first time I went through this I did it and had no issues with my mouth. Last night my mouth seemed a bit sensitive so I am not sure if it is due to me slacking on the rinse or not. I will monitor and see if the issue resolves when i now increase my mouth rinse. My body does not feel comfortable overall today and I feel quite fatigued. Mentally i feel tired even though i did not do much this weekend and spent it resting. I am not sure exactly what is causing the fatigue and have not yet isolated the cause of it.
I was texting with my cousin this evening and it reminded me of how when I compressed my abdomen it made it feel better. The length of time that I can spend standing up has decreased and interestingly enough lying flat on my bed brings a lot more pressure. We will see what things the nurses can come up with tomorrow. Last week I had a call with a social worker and she never showed up. I am a bit surprised that there has been no followup as of yet. We did hear back from Chicago and we need to pay for a consult for treatment options, but Mel told them that we are only interested in PIPAC as we can do standard of care on our own here at our own cancer center. Sometimes you forget how lucky you are to live in a city that has a cancer treatment centre. We do not need to travel for it and can do it from the comforts of our home. I am very lucky that I have Mel that can handle all of this stuff for me. Some of my coworkers are work I think are working on setting up a GoFundMe but I told them to coordinate with Mel as someone else may have done it. I have read about it and it is interesting that the most successful ones are created by others instead of the family. Today has been a bit rough of a day and hopefully tomorrow is much better. I have a lot of appointments tomorrow so I think it will be a bit tiring.
Q